Gettin' kind of tired of reading about it as 'news', though.
Hutterite, you obviously do not have a vested interest in this disease. Have a
family member come down with ALS(a death sentence) and your tune would change.
Thanks for the column. I say keep the ice bucket going. If readers aren't
interested they don't have to watch. They only need to be aware and make a
donation if they can.ALS strikes people in the prime of life.
It's a roll of the dice--there is nothing you can do to bring it on or
stave it off (as opposed to diseases brought on by risky lifestyles, for
example). As one who has lost a close relative to this dreadful progressive
disease, and several friends as well, I cheer on those who are bringing it to
the forefront and striving to raise money to find a cure.
There is no doubt that ALS is bad, but this "charity" just lobbies
washington for more money while they pay themselves huge salaries and try to
justify their actions.I guess more money might randomly help some
research somewhere but there is no direct connection to finding a cure for the
It is a very good thing that this ice bucket challenge has replaced the
'set myself on fire' challenge that was going on... maybe it still
is....I find it amusing that these social media challenges are like
lemmings heading toward a cliff.Less than half the people doing the
ice bucket over their head are actually donating to the ALS foundation. This
only shows that the lemmings have lost the purpose of the challenge and now it
is for show, not dough.
I agree with Fred T.Not only is it for a "show" now, but it
is the fad. Many people have no idea what it is even about. They feel it as a
challenge, and that's it. They have to dump water on their heads and
challenge someone else to do it.How sad it is that people are not
willing to donate to charities without being "challenged".I
for one will not participate in this contest. The ALS foundation uses stem cell
research on aborted babies. Way to support this murderous foundation as they
try to save the life of others. Looks very counterproductive and hypocritical
if you ask me.
I'm appalled at the attention this pharmaceutical scam is getting. Less
than 30% of the money goes to research, and all of that research is on
patentable drugs with all their unintended and un-researched side effects. There
is already a lot of research on natural substances to alleviate the causes of
ALS. If some of that money went to studying and furthering the use of herbs and
supplements to address the causes, not just the symptoms, I might be in favor of
I have to agree that we should be looking for the cause of diseases rather than
elusive "cures". How much has been spent on cancer research while we
ignore for the most part the known risk factors for contracting it? We still
have no cure accessible by ordinary people, but untold billions have been
disbursed in the name of searching for it?I prefer to choose my own
charities and want to know who the money will go to, what it will be spent on,
and how much goes to administrative costs etc.This gimmick does not
attract me. I don't think it is smart to dump ice cold water on oneself
and it seems an odd thing to do too; if you want to contribute do it, without
beating yourself up as an alternative. Lastly the writer talks of taking the
challenge "like just about everyone else". I don 't know anyone
personally who has taken the challenge. How many of your own family and friends
have done it; how many haven't? It's more of a media event and a fad
to talk about on social media.
A friend of mine in California caused a stinky when he found someone criticizing
the Ice Bucket Challenge for wasting "precious" water. After I got done
rollling my eyes, I thought I might just want to do the challenge multiple
times. I've also seen a poster claiming that millions of people
die each year because they don't have access to clean water, whereas ALS
claims 8K/yr? And we're to be morally outraged that we don't have an
icebucket challenge for the people who can't get clean water. People get up in arms about everything, especially if it's a good thing
and it gains popularity. I suspect more than anything, envy is to blame for why
good things get a bad rap.