An amazing woman. These stories give me hope and make my burdens a lot lighter.
Such a tough story. I can certainly see how more support(lets call it like it
is, she's asking for money)would be helpful. But unfortunately there are
literally countless "underfunded" programs out there. Sooner or later,
governments have to say enough is enough for how much money they can reasonably
take from those who are paying taxes. I certainly hope she has a
good support group of family and friends. This is a terrible disease to be
certain. I can't imagine your spouse becoming a child.
"Sooner or later governments have to say enough on how much money they can
take from taxpayers"I feel it is a matter of priorities. I feel
it is a misplaced priority to borrow money to give it away in the Middle East,
specifically Israel, when the needs of our own citizens like this lady and her
family are not being met.What are your thoughts?
Ken - I don't think this woman is asking for money. The support caregivers
yearn for in these types of situations goes way beyond money.My
mother has been a caregiver for my father (who is also very much like a child)
for the past nine years. What she needs in terms of support is . . .
understanding, a listening ear, someone to sit with my Dad so she can get away
from the constant stress and pressure. Money has nothing to do with the support
my mother needs and craves.
There are many causes of dementia but when it is a disease that strikes a young
person and help, caregiver help not financial, are not available because of a
person's age it is very frustrating to the family that can't turn
their backs on their loved ones and make it the state's problem. This
family is doing all they can to take responsibility for their loved one but
there is only so much a person can do without help and respite care. For more
information on MLD please visit MLDFoundation.org
You are amazing, and I can completely empathize with you. My husband is 44 and
has been diagnosed with Alzheimer's. It's difficult to watch as he
digresses, initially the diagnosis was frontaltemporal dementia, but then they
changed after more tests were run. Your daughters seem to be more understanding
and helpful than my children are, what a blessing for you. Enjoy them, make
their memories last. My husbands symptoms started when he was in his early
thirties, but no one believed us, so the treatment was delayed. Not that it
could stop it completely, but could it have given us more time? I am not sure. I
know the frustration is what I am saying. You are in my prayers.