Sometimes the greatest Hero, is a good Mom. Much respect for this mother and
those parents like her.
Thank you to the doctor who said, "A child should not suffer just because
their condition is rare, so to see that it's made a difference and to
receive that recognition really means a lot to me." I'm grateful
to doctors who study rare diseases and help just the few.And
I'm glad they have used the internet to offer support to one another.
It's so important!My daughter has a rare disease (1 per
million) called XP. You can find more about it by searching Anna Liberty XP.
Thank you for the dedication of good parents, both moms and dads. This is a
thankless job and two good parents make the job just a little easier. This young
man is one lucky boy to have family support.