U. among medical centers in clinical trials for new drugs
This is awesome news for Cindy Lynn.... would never have imagined it when she
was teen in our ward. Her family must be beyond words for her and this
treatment.... good job U of U.
This is incredibly wonderful news, for all those who suffer from this very
difficult disease and all who know and love them.I had a good friend
with CF who died from its complications many years ago. I remember feeling
terrible as he struggled so hard to breath and try to live as normally as
possible, knowing that he would only get worse. We all longed for some miracle
break through that would someday help relieve him of all the suffering. It came
too late for him but it's very gratifying to know that something like this
now exists. Thanks to all who've made it possible!
This is certainly a leap forward, but the DN should point out some facts. The
great majority of cystic fibrosis patients have the delta 508 deletion. Kadelco
is only effective in the 4-5% of CF that is caused by the G551D mutation.
This one's for Claudia. Would that she had lived to see it.