Thank you for sharing about Nathan, what a fine young boy and a fantastic
family. Good luck.
What a beautiful little boy and at the same time I'm very sad for him too. It
has to be tough not to be able to fully engage with siblings.to go thru the pain
of breaking bones at the slightest touch. I applaud the parents and their
judgement to bring him into the world and not discard him because he wasn't
perfect in their eyes. I hope Ryan does have a happy life but it will tough on
all. I wish him and his parents all the very best in the future.
Our son was born with OI, the mildest form of it, almost 30 years ago. So he
survived natural childbirth, somehow. We didn't know as much then about the
disease. He fractured his left femur three times when he was two years old. On
the second break, the orthopod suspected child abuse. Fortunately, after having
our son seen by many "experts" and not learning the diagnosis or
prognosis of his problem, a geneticist at the University Hospital, John Carey,
diagnosed OI when he was four years old, telling us there was nothing that could
be done to change the course of the disease. So far, the only time he
experienced hearing loss was during his teens. In fact, he'll be turning 29
this year, and his hearing seems to be improving some. He won't have children,
I think because of the 50% risk of passing on the disease. We were told that
girls would carry the mutated gene without having the collagen disorder, but
that boys tend to express the gene. Intellectually, our son was always at the
top of his class and district scores. His classmates called him
"genius." Continue to have hope.
I admire Nathan's parents for letting him lead a full life despite his Ol
disease. It's wonderful for me to hear about Nathan enjoying life. I love
hearing about his contagious, happy, cheerful & positive attitude. Nathan
will do great things in life & already has.
What a touching story. I admire his parents for being so willing to let Nathan
experience so much of life. What a special little boy--I couldn't help but
notice that he was almost constantly smiling! Makes me ashamed when I get down
sometimes over pretty trivial things.
We had a baby girl with OI May 2010. We learned in January that she was a
probable OI case; the Drs. couldn't tell us which type, or how severe it would
be. They tactfully brought up abortion, we said no, and they never brought it up
again. My wife had severe preeclampsia at 7 months pregnancy necessitating a
life flight to a big hospital, and a C section. Baby was born with broken bones
and lived two days, but her 5 siblings got to meet her, and we blessed her in
the incubator. Her mother and I were in the NICU when the alarms started going
off, and her breathing became abnormal. They tried twice to resuscitate her then
told us it wasn't going to work and we should hold her during her last hours.
She lasted several more hours, and ward members got her siblings to the hospital
75 miles from home. Genetic tests were unclear so we could never definitively
figure out which type of OI it was, probably type 2. Poor rib development made
breathing difficult besides the early birth. Since her exaltation is guaranteed,
she's the child we worry about least
what a heart warming story. Nathan is a special spirit and the Glad's are
blessed to have him in their lives and in their family. Good for them, raising
him to experience all that he can instead of wasting their time feeling sorry
for him and themselves. What a family!
Thank you for the wonderful story and for sharing Nathan's life with us. My
sister was born with severe OI 54 years ago. Nathan reminds me so much of her.
She was just as happy and positive. My prayers will be for your family and for
Nathan's continued progress.
Thank you for making my day a bit brighter.
Keep defying all the odds Nathan! We are cheering for you!
I'd been looking for a hero...Thanks Nathan, now I have you!